Date of Graduation
Master of Public Health (MPH)
School of Nursing and Health Professions
Patient-reported outcomes and surveying has increased in clinical settings in order to assess outcomes and patient health status. However, there is a lack of these assessments from a pediatric standpoint, an inpatient standpoint, and family perspective. In addition to health status and overall clinic experience, expanding the self-reported evaluation to include quality of life on physical and psychosocial levels will provide a more comprehensive evaluation of the patients’ health services. The PedsQL ™ scale scores four domains: physical, emotional, social, and school/work functioning. It includes a parent-proxy report as well as self-report for patients ages 5 to 18 years. Infant scales are also available for children 1-24 months of age that include a parent-proxy report.
The Wiskott-Aldrich Foundation aims to improve quality of life (QoL) surveying to best reflect patient and family sentiments for patients with the immunodeficiency disorder, Wiskott-Aldrich Syndrome (WAS). WAS is a genetically inherited immunodeficiency disease that severely suppresses the immune system to make the patient dangerously susceptible to autoimmune disorders and malignancies. The comparison of family impact and PedsQL™ can paint a picture of the family’s coping with WAS and what they may need beyond clinical treatment of WAS.
Bani-Hashemi, Tara, "Response to Quality of Life Surveying: An Analysis of Patients with Wiskott-Aldrich Syndrome" (2017). Master's Projects and Capstones. 502.
Child Psychology Commons, Clinical Epidemiology Commons, Immune System Diseases Commons, Other Analytical, Diagnostic and Therapeutic Techniques and Equipment Commons, Pain Management Commons, Public Health Education and Promotion Commons