Date of Graduation

Summer 5-2025

Document Type

Dissertation

Degree Name

Doctor of Psychology in Clinical Psychology (PsyD)

College/School

School of Nursing and Health Professions

Program

Clinical Psychology (PsyD)

First Advisor

Dr. Dhara Meghani

Second Advisor

Dr. Molly Memel

Third Advisor

Dr. Frederick Hives II

Abstract

Between 2012 and 2018, the annual 14% increase in insulin prices made Type 1 Diabetes (T1D) the most expensive chronic health condition, significantly raising out-of-pocket costs for uninsured or underinsured individuals in the United States (Hayes & Farmer, 2020; Willner et al., 2020). This study utilized a qualitative content analysis methodology to explore the challenges and experiences of parents with children diagnosed with T1D with accessing insulin for their child. Five participants from various areas of the United States responded to open-ended questions both in person and via Zoom. The analysis revealed three main themes: pragmatics of managing diabetic care, the emotional impact and caregiver concerns, and the art of coordination and support networks. Three subthemes emerged: financial constraints, insulin injections/pump, and navigating insurance. The study emphasizes the importance of access to healthcare services in order to address the multifaceted needs of children with T1D and their families, and also raises clinical implications related to T1D management. Practical recommendations for clinicians, educators, and policymakers to enhance support and improve outcomes for pediatric patients with T1D are provided and discussed. Future research should prioritize inclusive recruitment strategies and address barriers to participation among minority populations to ensure interventions are tailored to the diverse needs of all individuals and families affected by T1D, particularly given the widespread mistrust within the healthcare system among marginalized communities. Additionally, exploring systemic barriers, including social determinants of health (SDOH), and advocating for policy reforms aimed at expanding healthcare coverage and promoting health equity are essential steps in addressing healthcare disparities and improving access to care for vulnerable populations affected by T1D.

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